Welcome to the Massachusetts Rare Action
Network Page.
Rare Action Network (RAN) mission is to connect & empower a unified
network of individuals & organizations with tools, training, & resources to become effective advocates for rare diseases through national & state based initiatives across the US Please join our efforts in connecting and empowering
individuals across the state to advocate for our rare disease
community. Like this page and officiall
01/10/2026
CNBC launches CNBC Cures to help 30 million Americans with rare diseases CNBC Cures aims to raise awareness of rare diseases. Led by "Squawk Box" anchor Becky Quick, CNBC Cures was inspired by her family's own rare disease journey.