11/07/2026
Over the May half term I ran a fundraiser session to help raise money and awareness of the Congenital Disorders of Glycosylation (CDG) charity.
As some may be aware, our grandson was born with PIGA-CDG which is a rare genetic condition. There is currently no cure, and the diagnosis is life-limiting.
With the help of some beautiful souls, I was able to create a wonderful day for parents and young people to enjoy.
We investigated the ponds, played games, created art pieces, ate a wonderful spread of food and finished off with a guided bat walk.
A massive thank you to those who helped and joined the session. We managed to raise £420. There is a link in my bio if you would like to donate too.
11/07/2026
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