27/11/2022
IH is no joke! There must be a cure. It's a roller coaster of pain, no pain, the worst pain ever. I'm in the worst pain ever part again. My heart goes out to everyone suffering with this disease. We have discovered I have mast cell disease on top of this. A lot of people with eagles syndrome, IH, and nutcracker syndrome have mast cell as well. It's difficult to diagnose. If you have IH please have an immunologist look into this for you.
I am trying to put together another 5k for the spring. If you are interested please let me know. I'll work harder to make this happen. I have plans to make a better more exciting experience for us. Thank you to everyone who ran in the first race! Keep Hope flowing!!
My book "Hope " is available on Amazon and you can read the whole journey from start to hopefully a finish one day.
I'm working on the next book "Keep Hope Flowing" .
Thank you all for the support and the proceeds go to helping me get the necessary treatments and possibly another surgery. 💙💚💙💚💙💚💙💚
12/07/2022
Registration is now open! Click the link below and help us raise funds and awareness for an amazing cause!!!
5k walk/run supporting Miracle for Erin/ IIH awareness and CTE
Event Date: Saturday September 3, 2022 9AM-2PM Event Address: Forney Community Park 241 S FM 548, Forney, TX 75126 Contact us at (972) 896-1465
11/07/2022
Sept 3rd 7am warm up and registration
Event starts at 9am!! Thank you in advance! Much love and Hope,
Erin
11/07/2022
The event has been changed to Sept 3rd!!!!!
Please
Mark your calendar's and be ready to run!
11/07/2022
If you are wanting to be a sponsor I would LOVE IT!!!
platinum sponsor is $1000 or higher for 1/4 mile
$500 Is a gold sponsor
$300 is silver
$100 is bronze
Each sponsors 1/4 mile and gets a company or individual logo on the shirt.
We need sponsors for bananas, water, Gatorade, & power bars.
Thank you all so much in advance!
There are children with this disease.
I know the absolute pain that I am in every day and the amount of medicine it takes for me to live a somewhat normal life.
I can't imagine what it would be like to be a child with this disease.
If you do not know my story let me give you a brief overview. About 10 years ago I suffered a traumatic brain injury and it has taken this long to show up as intercranial hypertension and an elongated styloid process that is crushing my internal jugular vein not allowing enough oxygen or blood to reach the brain. I need to have another styloidectomy on the right side as well as another procedure at the C1 and C2  which is brain stem level. There are multiple holes in my face causing intercranial hypertension that will never be fixed but will be manageable with medication.
If you are interested in donating, whether it is through monetary amounts, your time or even just handing out water and bananas, anything you can do would be greatly appreciated more than I can even say.
Please text Erin at 972-896-1465 and let me know if you would like to sponsor this event in anyway thank you and much love to you!💙💚💙💚🦋💙💚💙💚
10/07/2022
To register go to: https://forms.gle/whvsrWH2MKZxMtjp9
Cost is $30 per person and $10 per child for the dash. On-site registration is allowed but shirts are limited
Everyone receives a participationt-shirt and the 1st-3rd winners in each catagory win a medal.
Runners start at 9am ages 25-34yrs first, then youngest to oldest every 10min apart.
100yd dash will be at 12:00
Dancin'Ovations Sparklers perform at 12:30
Awards ceremony at 1:00
You may arrive at 7 am to warm up and register under the red tent and pick up
Your shirt.
Payment details are:
Venmo Erin- Salerno-4
Zelle 972-896-1465
PayPal
Cashapp $erinsale13
The starting line is visible in the park!
Thank you more than I can say for supporting this cause and me!
💚💙💚💙💚💙💚💙💚💙💚💙💚💙💚💙
5k walk/run supporting Miracle for Erin/ IIH awareness and CTE
08/07/2022
Hello everyone! I wanted to ask for your prayers please! More diagnosis' and I am afraid. My faith will carry me and God will not drop me. Hindsight is always 20/20, and I have witnessed His work in our lives. This helps me know that He won't drop me now. It's tough to see while you are under fire but I know from life experience He's got me!
My testimony is a crazy one and I have been working on a book to hopefully help people who suffer with invisible diseases and the ways we get them. Please watch for the book when it comes out soon on Amazon!
Prayers for you all too! Together we can have Hope and that miracle. Love y'all so much! Marsha Thauwald's Books thank you for your guidance and motivation and love and more!! I couldn't do this without you.💚💙🦋