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Matthew's Building Blocks Fund

Matthew's Building Blocks Fund

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Matthew is 15&has Adenylosuccinate Lyase Deficiency.This fund is set up to help build an extension s My name is Matthew. I am 10 years old.

I live with my Mummy & Daddy. I love music, lights & exploring objects with my hands. I really enjoy school & my favourite activity is swimming. I was born with a very rare genetic disorder called Adenylosuccinate Lyase Deficiency (ADSL). I am the only child diagnosed with this condition in Ireland so I am very special. ADSL causes profound developmental delays. I am non-verbal and use a wheelchai

08/06/2020

Matthew is heading in to Phase 2 with a smile.... 😉 Hope everyone is doing well! We are still working hard to keep Matthew safe & well... not going to lie, it's been tough & tiring. I think children with complex needs, like Matthew are going to have a harder battle to get some sort of life back.

The phases are not going to mean the same thing for everyone so be mindful of this & try not to judge 💙

Wash your hands 😉👏

Photos from Matthew's Building Blocks Fund's post 13/04/2020

Hope you all had a lovely, safe Easter 🐰🍫😃 We have kept Matthew at home with only contact from Gary & I since March 12th. It's not been easy for us caring alone but Matthew has been a star & is coping well 🤩 Please continue to follow public health guidelines so we can all get through this time healthy & see our families & friends again 🤗 💕 Some pics from last few weeks....

23/03/2020

**REMINDER**

**THIS PHOTO IS NOT TODAY!!!** But this is for shock factor!! A few years ago, Matthew was taken by ambulance & minutes after this photo, he was taken into resus as he was vomiting, his airway full of mucus & couldn't maintain his oxygen levels.... Matthew had a "common cold"!! We do not know how Matthew would react to Covid-19. Gary & I are working so hard to keep him safe but with people not following guidelines & spreading the virus about, I don't know how much longer we can keep it away! Please, please STOP going to crowded places with your families, stop letting your kids out to play with others & try to reason with your teens to stay in!! We have to act like we have the virus & maintain physical/social distance. Lives depend on it!

15/03/2020

It's a simple message... Please, please listen & just do it where possible!! 🙏💕

31/12/2019

I think it's safe to say that Matthew's Building Blocks, the support we got & Matthew's new rooms were the absolute highlights of our decade 😄 Life-changing for sure!! 💕
Matthew's health has generally been good in recent months but he hasn't been well over Christmas. Today was a better day though 🤞 Wishing you & yours a very happy & healthy new year 🎉🥂

04/08/2019

The struggle is real trying to get out & about with Matthew these days. The timing has to be right with "toileting", feeding & napping. Getting him in & out of the car takes time & energy, not to mention that chair is not exactly light-weight 💪

However, we really do appreciate these lovely, short excursions when we can get them 😄 We had a lovely hour in Newbridge 🌞 And we have an assessment for a powerchair this week... 🤞

10/06/2019

Finally it's happening in Ireland 😊🔨🔧🔩🔗🏡 We hope it gets all the support it deserves!! The struggle is very real for people living in accommodation which is unsuitable for their needs. Matthew's extension was a life-changer & we wish everyone to be as comfortable at home, as he is now 💕

Photos from Matthew's Building Blocks Fund's post 17/03/2019

Matthew turned 15 yesterday 🎉🎂🎈 He had a brilliant day celebrating with family ❤ The celebrations were topped off today with a visit to Swords fire station where his buddy, Firefighter Al, gave him the grand tour & put him through his paces 😉 🚒 Very grateful to Al & C Watch for making the special visit happen 😃

Photos from Matthew's Building Blocks Fund's post 25/12/2018

A very Happy Christmas everyone!!! 🎅🎄🎉🎁

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