Major’s Super heroes

The arrival of Kaftrio for many people with CF has raised the potential for reducing treatment burden by stopping other therapies.

We've been working with a team of academics to plan a national study to assess stopping some nebulised therapies after commencing Kaftrio. This study will be carried out to examine whether it is safe to stop some nebulised therapies, and if the results are positive they will inform best practice for CF teams, people with CF and their families.

If funded by the government (announcement expected during September), the trial will be called CF STORM.

You can discuss this trial with your CF team, or sign up to our clinical trials newsletter to receive updates www.cysticfibrosis.org.uk/clinical-trials-newsletter

If you wish to stop one of your CF therapies this is something that should be discussed and undertaken in partnership with your CF team

The roll out of the new coronavirus vaccines brings hope for the cystic fibrosis community. However, it's understandable to have some questions and reservations. Health worker Emma was one of the first people with CF in the UK to get her vaccine, and has shared her experience. http://ow.ly/rz7V50DclKd

I think we met our match with this one!!!

Great to hear that we’re achieving what we set out to do 👍🏼

Another happy customer!!!

Fantastic meeting two more mini superheroes